Clinical Studies

For drugs and therapies to be developed for PKD, clinical studies must be conducted. Patients play a key role in the research and development process by volunteering to participate in clinical studies. By participating in observational or interventional studies, you can help researchers unlock the secrets of PKD to find a treatment.


PKD Clinical Studies Fast Draw
Watch videos about participating in
clinical studies

PKD Clinical Studies Fast Draw

This video describes the role of clinical trials in achieving FDA approval for drug treatments.
Watch now >

Participate in Clinical Studies to Discover PKD Treatments and Improve Your Health

These videos feature testimonials by patients who participated in studies, and researchers, physicians and study coordinators who have conducted them.
Watch the documentary >
Watch the short version >

Special thanks to Otsuka America Pharmaceutical, Inc., who provided an educational grant to produce these videos.

Clinical Trials Awareness Program

One of the largest impediments to clinical trial patient participation begins with awareness. We believed it was our goal to address this challenge and launched the Clinical Trials Awareness Program, an aggressive program to increase awareness of PKD clinical studies among patients and families. The program is focused on educating patients about current and upcoming studies so they can make informed decisions about participating. The goal is to simplify the process of finding clinical studies for PKD patients in their geographic area by sending Accelerating Clinical Trials (ACT) Alert emails about studies that are being conducted.

Sign Up for ACT Alerts

Once you sign up, you will receive alerts about clinical studies happening throughout the United States.

Sign up for ACT alerts

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
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©2019, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2019, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.